I had a long talk with E. Long being 2 minutes. That is long for a kid like him! He completely understands that he is different and that he has a form of autism. I'm not sure he understands exactly what Aspergers is, but I think we will cross that bridge another time.
Today, I made him promise me that he is going to play with the other kids at recess. I guess we will see after school if that is what happened. Here's hoping...
I am ELK's mom. E, Lo and Ky-bear. E has Aspergers and ADHD. Lo is moderately functioning autistic and Kybear is just a little diva. This is my life and I want to share it with you.
Tuesday, September 25, 2012
Thursday, September 20, 2012
Brokenhearted
I had to write this.
I have to share it. For the first
time in a very long time I feel as if my heart is broken. I have tried not to cry over my children
having autism. Crying does nothing. Being strong and getting them the therapy
they need and the support they so crave and desire is what I have done. Last night, I broke down and cried.
Evan has Aspergers.
When we finally got that diagnoses, things started to make sense. We were able to figure out what worked best
for him, we got him onto an IEP for his trouble with his OT skills. The thing is, I am at a loss on how to
educate my son socially. People with
Aspergers have a social deficit. The everyday
things that most people overlook can cause a meltdown for a child with
Aspergers. Evan doesn’t understand many
jokes. Sarcasm is completely lost on
him. He says things out loud that most
people would find inappropriate or rude.
That is just who he is. He doesn’t
have a filter or a way to control it. Especially
not at 6 years old. Those are just a few
examples of how Aspergers affects him.
Back to yesterday.
Every day I ask Evan how school was.
I ask him if he got his work done with little prompts to keep him on
task. I ask him what he ate for
lunch. Yesterday I asked him what he
does at recess. He looked at me and said
that it takes him a while to get outside because he likes to wear his
coat. Ok, I get that. I asked him what he does when he gets
outside, like does he go on the swings or does he play with the other kids or
whatnot. He told me that he doesn’t play
with other kids. They don’t like
him. Instead he spends his recess
talking with the aides that watch the kids.
He said that they are his only friends and they are the only ones who
are nice to him. He said that they even
let him help them get everyone inside for lunch.
Inside I died a little.
My little boy is already not fitting in.
He has no clue why other kids don’t like him. Instead he gravitates towards the adults who show
him positive attention which makes him think that they do like him. He thinks of the aides as his friends. I can’t
even try to explain to him what is happening.
He is different and that is wonderful but at the same time what on earth
do I do to show him how to associate with kids his age? He should be playing and running around. He should be doing things that other 6 year
old kids do. He isn’t like other 6 year
olds though. I get that. He doesn’t.
The other kids don’t get it either.
I fear that it is only going to get worse for him. I fear that kids will soon starting making
fun of him and he is going to be miserable.
Actually, I think it is already happening and he is too afraid to tell
me because knowing him, he probably thinks that it is his fault.
My heart is broken. School
is hard enough without having challenges like his. I am open to ideas and suggestions.
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