Thursday, September 20, 2012

Brokenhearted


I had to write this.  I have to share it.  For the first time in a very long time I feel as if my heart is broken.  I have tried not to cry over my children having autism.  Crying does nothing.  Being strong and getting them the therapy they need and the support they so crave and desire is what I have done.   Last night, I broke down and cried. 

Evan has Aspergers.  When we finally got that diagnoses, things started to make sense.  We were able to figure out what worked best for him, we got him onto an IEP for his trouble with his OT skills.  The thing is, I am at a loss on how to educate my son socially.  People with Aspergers have a social deficit.  The everyday things that most people overlook can cause a meltdown for a child with Aspergers.  Evan doesn’t understand many jokes.  Sarcasm is completely lost on him.  He says things out loud that most people would find inappropriate or rude.  That is just who he is.  He doesn’t have a filter or a way to control it.  Especially not at 6 years old.  Those are just a few examples of how Aspergers affects him.

Back to yesterday.  Every day I ask Evan how school was.  I ask him if he got his work done with little prompts to keep him on task.  I ask him what he ate for lunch.  Yesterday I asked him what he does at recess.  He looked at me and said that it takes him a while to get outside because he likes to wear his coat.  Ok, I get that.  I asked him what he does when he gets outside, like does he go on the swings or does he play with the other kids or whatnot.  He told me that he doesn’t play with other kids.  They don’t like him.  Instead he spends his recess talking with the aides that watch the kids.  He said that they are his only friends and they are the only ones who are nice to him.  He said that they even let him help them get everyone inside for lunch.

Inside I died a little.  My little boy is already not fitting in.  He has no clue why other kids don’t like him.  Instead he gravitates towards the adults who show him positive attention which makes him think that they do like him.  He thinks of the aides as his friends.   I can’t even try to explain to him what is happening.  He is different and that is wonderful but at the same time what on earth do I do to show him how to associate with kids his age?  He should be playing and running around.  He should be doing things that other 6 year old kids do.  He isn’t like other 6 year olds though.  I get that.  He doesn’t.  The other kids don’t get it either.  I fear that it is only going to get worse for him.  I fear that kids will soon starting making fun of him and he is going to be miserable.  Actually, I think it is already happening and he is too afraid to tell me because knowing him, he probably thinks that it is his fault.

My heart is broken.  School is hard enough without having challenges like his.  I am open to ideas and suggestions.  

1 comment:

  1. I just cried a little for you and for Evan! Sounds similar to something Jordan went through. He knows he's different but didn't let that stop him from playing with other kids. That is until he got into 1st grade and saw just how far behind he was compared to them. They were learning to read and he was still struggling to get all of his letters right every time. He since then has gravitated towards kids much younger then him. He's 7 and will play with 3 yr olds before kids his age. The only time we see him with kids his age is at school where he is in a special ed class. He's the oldest boy in the class this year and he seems to fight in so much better then last year. He still keeps away from kids his age that are not "special needs" but he seems to be much happier with a connection to others like him. I'm sure I'm not helping much but I just wanted to say I'm here and I understand a little what you are going through. Last week I had to stand back and watch a little boy bully Jordan. I died a little but I can't protect him from everything forever. To Jordan it was a horrible experience but any normal kid would have just shrugged it off. How do we explain to them to let things go? That in Jordan's case he is just very sensitive and most kids see it and just go right for that to make him cry. Some days I just want to keep him home and protect him from all that could possible hurt him. To bad that's not a reality I can provide! Love you sis I'm here if you need to chat!

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